People with variations in sex characteristics (VSC) have bodies whose anatomical, chromosomal, or gonadal characteristics do not conform to the binary male-female model. Research involving people with VSC has primarily focused on medical outcomes, such as the success of or complications arising from surgical interventions. Important aspects are often overlooked, including challenges in navigating healthcare systems that do not fully meet their needs and the psychosocial realities of living with a body that falls outside prevailing social norms.
The project aims to improve the lives of people with VSC by exploring their healthcare experiences, identifying best practices in care, developing an online library of decision aids, and training healthcare professionals to provide personalized and respectful care. The experiences and perspectives gathered through the interview study will also be curated and made available on DIPEx.ch for educational and informational purposes.

UZH: PD Dr. med., Dr. sc. med. Jürg C. Streuli
UNIL: Dr. Cynthia Kraus
UZH: Dr. Eva De Clercq, Dr. Beatrix Göcking, Dirkje Swennen
Institute of Biomedical Ethics and History of Medicine (IBME), ZHAW School of Health Sciences - Institute of Public Health
2025–2028
Swiss National Science Foundation SNSF NFP83